Self management of patients with ankylosing spondylitis through a personal health system


Tezin Türü: Yüksek Lisans

Tezin Yürütüldüğü Kurum: Orta Doğu Teknik Üniversitesi, Mühendislik Fakültesi, Bilgisayar Mühendisliği Bölümü, Türkiye

Tezin Onay Tarihi: 2015

Öğrenci: MERT GENÇTÜRK

Danışman: FEHİME NİHAN ÇİÇEKLİ

Özet:

Today, the growth in the number of aged people in the European population imposes an increasing burden on the healthcare systems. Accordingly, the number of people suffering from chronic conditions continues rising, which leads to an increasing demand for health care services and the subsequent cost pressure on the systems. In this environment, the citizens', especially chronic patients’, contribution to their own treatment is crucial to ensure future health care supply in ageing society. Patient empowerment integrates multiple concepts that allow a patient to effectively self-manage his disease, which are accessing to health information, education, bi-directional communication between patients and healthcare professionals, self-care support, chronic disease management support and shared decision making. Patient empowerment is considered as a potential tool to reduce healthcare costs and improve efficiency of the healthcare systems. Although there has been significant research in the field and there are important pilot studies in place, the ultimate implementation of patient empowerment is not yet a reality. In this thesis, we present a Personal Health System (PHS), namely PHS4AS, addressing all the concepts involved in patient empowerment in order to achieve the ultimate implementation of it. PHS4AS is developed for patients suffering from ankylosing spondylitis (AS), which is a rheumatismal chronic disease with high prevalence and incident rates in Turkey. The developed system has been used and evaluated by 131 patients and 3 healthcare professionals in a pilot study in Turkey within the scope of European Commission supported CIP-ICT-PSP-297260 PALANTE Project.